The Unusual Condition of Tessa Evans: Overcoming Obstacles and Motivating Change
Tessa Evans was born on Valentine’s Day in 2013 with a rare genetic condition called Bosma arhinia microphthalmia syndrome, which causes the absence of a nose and can affect eye, brain, and puberty development. With only about 100 cases reported worldwide, her condition is extremely rare.
Despite no signs during pregnancy, her parents, Grainne and Nathan from Northern Ireland, embraced her uniqueness and sought ways to improve her quality of life. At just two weeks old, Tessa underwent a tracheostomy to help her breathe and eat, and at age two, she became the youngest person to receive a cosmetic nose implant. Thanks to advances in 3D printing and medical tattooing, her treatment continues to evolve as she grows.
Though she faces challenges like the inability to smell dangerous odors, her courage has inspired others and pushed medical boundaries. Her story, shared through the Facebook page “Tessa; Born Extraordinary,” is a powerful example of resilience, innovation, and unconditional love.
